Charcot Marie Tooth Support and Awareness
Charcot Marie Tooth support, awareness, and disease information website by CMT patient Diane Gracely. Join Diane’s CMT Support Facebook group, and sign up for Diane’s CMT support newsletter. Subscribe to her CMT YouTube channel to watch personal videos (more videos coming soon). Help Diane raise awareness by purchasing her CMT t-shirts, masks, and accessories.
What is CMT?
Charcot Marie Tooth is a hereditary neurological disease. A disease that most people never heard of. CMT can be diagnosed through nerve conduction studies and genetic DNA testing. Our neuromuscular system starts at the brain, the master computer, and sends signals to the motor (muscles) via the spinal cord (the cable) and hooks up with the peripheral nerves for connection between the brain and muscle. CMT is the disease that impairs this connection causing the CMT Symptoms. CMT progresses and deforms most patient’s feet. Deformities vary patient to patient. Charcot Marie Tooth causes other health problems. For example, peripheral neuropathy, scoliosis, muscle wasting, drop foot, chronic nerve pain and muscle spasms. Can also cause respiratory problems, and other health issues. It’s a rare disease with NO CURE.
Diane Gracely is the owner of this website. She is a 56 year old woman living with CMT in Florida. Diane is passionate about supporting others living with CMT. She created this website to work from home and support CMT patients, educate others, and raise awareness. She shares her personal CMT life, experience, and knowledge while speaking with other patients.
Diane designs graphic art for t-shirts, including CMT awareness designs. Shop for a variety of t-shirts designed by Diane’s Tees on TeePublic. click here to help Diane raise awareness. She earns a small commission for each product sold with her designs on them. This helps Diane pay for the costs of this website and advertising.
Support for Charcot Marie Tooth Patients and Families
Diane is passionate about supporting Charcot Marie Tooth patients and families. Visit her CMT Support Facebook page and join her CMT Support Group on Facebook. After all, Diane’s mission is a safe place for CMT patients to support each other. No one else understands our pain and daily struggles. That’s why it’s so important to get support from others living with CMT. Go to Diane’s main support page for more info.
Diane writes articles about CMT for her blog page. In addition, Diane is recording videos to share her life experiences on her CMT YouTube channel. Browse through the information provided on pages throughout this website. And please, subscribe to her CMT YouTube Channel. New videos coming soon.
September is CMT Awareness Month in the United States — a dedicated time to share and educate others about Charcot-Marie-Tooth (CMT).
A Little About Diane and Charcot Marie Tooth Disease
Diane was born in 1964 with CMT. CMT permanently disabled Diane in 1997 and put her in a wheelchair. Diane’s feet had become badly deformed due to the progression of CMT. However, she was never one to give up on anything. She began searching for an orthopedic doctor with knowledge of CMT. Eventually she found Dr Paul Juliano in Hershey, Pennsylvania. Dr Juliano reconstructed both of Diane’s feet and got her walking again.
Although, Diane knew it didn’t stop CMT from progressing, it gave her hope. Today, Diane can still walk, but she suffers with other symptoms from CMT. Fatigue is a problem many of us face. Diane takes supplements to help her fatigue. Throughout this website you will see more about Diane’s personal life with CMT. Including photos, videos, and CMT information. Diane’s personal story includes how she became a successful online home business entrepreneur. After becoming permanently disabled, Diane needed a way to supplement her social security disability income. Due to becoming disabled at the age of 33, she does not receive enough from SSD monthly to survive. Therefore, Diane began starting up online home businesses so she could work from home. This is a long story and she’ll share it with anyone who wants to know how she did it, and what she did. You’ll find more about it here.