Symptoms

Charcot Marie Tooth Symptoms

Charcot Marie Tooth symptoms and information by Diane Gracely. The symptoms vary from patient to patient, but the disease affects the patients feet first. This second picture below is exactly how CMT slowly progresses in our younger years and then BAM, all of a sudden we are hit hard with all of these symptoms getting much worse.

Charcot Marie Tooth disease symptoms
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CMT Info
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What is Charcot Marie Tooth Disease

Diane Gracely was born with Charcot Marie Tooth disease. A hereditary neurological disease that deforms the feet. As the patient ages CMT progresses, causing many more health problems. CMT is a rare disease. 1 in 2,500 have Charcot Marie Tooth. Therefore, it’s not as rare as most people think. But, no one has ever heard of it. There is NO CURE for CMT.

charcot marie tooth
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Peripheral Neuropathy and Charcot Marie Tooth

Another Charcot Marie Tooth symptom is chronic nerve pain, tingling, and numbness. Therefore everyone who has CMT also has Peripheral Neuropathy. Surely, many patients can relate to this photo.

charcot marie tooth symptoms
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CMT Deformed Feet Photos

In any case, CMT causes muscle loss and eventually can severely deform the patient’s feet. Below is a picture of Diane’s feet before she had foot reconstruction surgeries.

deformed cmt feet
Diane’s Deformed CMT Feet

Diane became permanently disabled by CMT in 1997. She could not walk without excruciating pain in her feet. She found a neurologist who was well educated about Charcot Marie Tooth. Throughout a three year time frame, he reconstructed both of Diane’s feet. Below is a photo of Diane’s feet now.

cmt feet
Diane’s CMT Feet Today

Visit Diane’s CMT Support page for more information.

 

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